An Unknown Future for My Daughters and I

I've had Tabitha at home with me while Blakley is at a local nursery.

No one, not the doctors and nurse either, know how Tabitha will be as she krows older.

To be honest, no one knows how my personal condition, with a form of progressive multiple sclerosis, will be as I grow older.

As many people do I look at Wikipedia about mutiple sclerosis:

• "The average life expectancy is 30 years from the start of the disease, which is 5 to 10 years less than that of unaffected people. Almost 40% of people with MS reach the seventh decade of life. Nevertheless, two-thirds of the deaths are directly related to the consequences of the disease. Suicide is more common, while infections and other complications are especially dangerous for the more disabled. Although most people lose the ability to walk before death, 90% are capable of independent walking at 10 years from onset, and 75% at 15 years." [1]
  

Well, I don't plan to 'pop my clogs' any time soon.  I want to see my children grow up and me to be annoying to them (and my wife as well of course).

As it is, Tabitha is having trouble with the medication she has to drink a small amount of a steroid and that does work well with the order of food she takes otherwiise she throws up (like all over me when I had her on my lap).  She's bit by bit being weaned off it at the moment.

She also has special little gloves so she doesn't nibble at her fingers.  They are deliberately made to have a crunching noise which I think sometimes makes her sister wake up at night. (Blakley's normally a deep sleeper.)

Still don't have a special chair for Tabitha but apparently having special exercises for her at the nursery which I've asked them I'd also like to attend.

You know I'm normally an author but this is diverting me from my work.  I'm not bitter about that especially knowing it'll probably give me inspiration in my novel writing in some way!

(Let's face it that happened with Ben Elton's novel Inconceivable.  He and his wife were trying for a child which led to this book.)

Well, "my work in progress" doesn't feature any children (yet - that could change!) but it certainly questions reality!

What are my children going to think of that when they're older?

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1. https://en.wikipedia.org/wiki/Multiple_sclerosis