I've had Tabitha at home with me while Blakley is at a local nursery.
No one, not the doctors and nurse either, know how Tabitha will be as she krows older.
To be honest, no one knows how my personal condition, with a form of progressive multiple sclerosis, will be as I grow older.
As many people do I look at Wikipedia about mutiple sclerosis:
Well, I don't plan to 'pop my clogs' any time soon. I want to see my children grow up and me to be annoying to them (and my wife as well of course).
As it is, Tabitha is having trouble with the medication she has to drink a small amount of a steroid and that does work well with the order of food she takes otherwiise she throws up (like all over me when I had her on my lap). She's bit by bit being weaned off it at the moment.
She also has special little gloves so she doesn't nibble at her fingers. They are deliberately made to have a crunching noise which I think sometimes makes her sister wake up at night. (Blakley's normally a deep sleeper.)
Still don't have a special chair for Tabitha but apparently having special exercises for her at the nursery which I've asked them I'd also like to attend.
You know I'm normally an author but this is diverting me from my work. I'm not bitter about that especially knowing it'll probably give me inspiration in my novel writing in some way!
(Let's face it that happened with Ben Elton's novel Inconceivable. He and his wife were trying for a child which led to this book.)
Well, "my work in progress" doesn't feature any children (yet - that could change!) but it certainly questions reality!
What are my children going to think of that when they're older?
My twin daughters (Tabitha and Blakley) are just over a year old.
Blakley is bouncy. When she was just a few weeks old, I could tell she was intelligent. Now she keeps pulling herself from her knees on the floor to standing by using any solid object to hold onto. (The solid objects are like a table and me when I'm sitting.) She can't walk yet but...
Now about Blakley. Thing morning, she kept wanting me to help her eat MY cereal. (sigh.) So there I was putting a spoon of milk + cereal in my mouth then a smaller serving to my daughter hinting with her open mouth...
I'm sure my wife didn't include that in the list one of the warnings in bringing up a child.
Tabitha, however, has her own milk given by a tube going down one of her nostrils. Not surprisingly, she doesn't like it and regularly pulls it out. As a result, nurses keep coming over to our house.
She has a special chair used at the nursery the twins go to. Yes it's expensive sending the girls to a nursery. They have a special supportive chair for Tabitha. (Similar to this one.) At home we don't. C'est la vie.
I've got two year old daughters.
It's hard to admit that one of my daughters is disabled.
I can hear the vocal criticisms. "If you're disabled why do you have children?"
The answer is simple. I'M DISABLED NOT IMPOTENT.
My wife doesn't like me talking about my disablities. Yeah, they're plural. I have a form of secondary multiple sclerosis (MS), hearing loss in both ears and nerve damage on my face. Yeah I have asthma as well but anyway...
By the way, MS affects every part of your body EXCEPT your hearing.
And I wear two hearing aids...
My daughter is just a year old. She has delayed development. We honestly don't know if ultimately she'll be OK or always need help.
She has a twin sister who has no issues. But that doesn't mean I love her more.
I love them both equally.
|Today I was looking after my disabled daughter. In fact, lets change things here.
When my wife was being scanned we could see one embryo was big and moving a lot around. The other was smaller and moved a lot less.
We hadn't decided on their names so the smaller on was Tiny Tot or TT and the bigger active one we called Big Bugger or BB.
Did those nicknames influence us in formally naming our daughters? TT became Tabitha and BB became Blakley. (Obviously I'm using pseudonyms here.)
Well, their birth was a month before their due date (aound the 2nd November)
My wife was informed the birth would be by C-section as her previous daughter was born by emergency C-section. She's never given a natural birth.
Well, the injections weren't straightforward for my wife. Several tests and eventually they were able to do the C-section under local anaesthetic.
Tabitha was born first and the medical staff immediately took her aside to run tests.
Blakley was born a minute later.
After a few minutes cleaning by the nurses, Blakley was placed on my lap where she fiercely gripped one of my fingers.
That was just the start.